Page 84 - 《中国药房》2023年24期
P. 84
[12] NARAINE V S,RISEBROUGH N A,OH P,et al. Health- [23] BOOTH J,OLADAPO A,WALSH S,et al. Real-world
related quality-of-life treatments for severe haemophilia: comparative analysis of bleeding complications and
utility measurements using the Standard Gamble technique health-related quality of life in patients with haemophilia
[J]. Haemophilia,2002,8(2):112-120. A and haemophilia B[J]. Haemophilia,2018,24(5):e322-
[13] GRINGERI A,MANTOVANI L G,SCALONE L,et al. e327.
Cost of care and quality of life for patients with hemo‐ [24] KEMPTON C L,RECHT M,NEFF A,et al. Impact of
philia complicated by inhibitors:the COCIS Study Group pain and functional impairment in US adults with haemo‐
[J]. Blood,2003,102(7):2358-2363. philia:patient-reported outcomes and musculoskeletal
[14] WASSERMAN J,ADAY L A,BEGLEY C E,et al. Mea‐ evaluation in the pain,functional impairment and quality
suring health state preferences for hemophilia:develop‐ of life(P-FiQ)study[J]. Haemophilia,2018,24(2):
ment of a disease-specific utility instrument[J]. Haemo‐ 261-270.
philia,2005,11(1):49-57. [25] KOEBERLEIN-NEU J,RUNKEL B,HILBERG T. Cost-
[15] HOOTS W K,EBBESEN L S,KONKLE B A,et al. Se- utility of a six-month programmed sports therapy(PST)in
condary prophylaxis with recombinant activated factor Ⅶ patients with haemophilia[J]. Haemophilia,2018,24(3):
improves health-related quality of life of haemophilia pa‐ 385-394.
tients with inhibitors[J]. Haemophilia,2008,14(3): [26] O’HARA J,WALSH S,CAMP C,et al. The impact of se‐
466-475. vere haemophilia and the presence of target joints on
[16] FORSYTH A L,WITKOP M,LAMBING A,et al. Asso‐ health-related quality-of-life[J]. Health Qual Life Out‐
ciations of quality of life,pain,and self-reported arthritis comes,2018,16(1):84.
with age,employment,bleed rate,and utilization of hemo‐ [27] CARROLL L,BENSON G,LAMBERT J,et al. Real-
philia treatment center and health care provider services: world utilities and health-related quality-of-life data in he‐
results in adults with hemophilia in the HERO study[J]. mophilia patients in France and the United Kingdom[J].
Patient Prefer Adherence,2015,9:1549-1560. Patient Prefer Adherence,2019,13:941-957.
[17] CAVAZZA M,KODRA Y,ARMENI P,et al. Social/eco‐ [28] DAVARI M,GHARIBNASERI Z,RAVANBOD R,et al.
nomic costs and quality of life in patients with haemo‐ Health status and quality of life in patients with severe he‐
philia in Europe[J]. Eur J Health Econ,2016,17(Suppl mophilia A:a cross-sectional survey[J]. Hematol Rep,
1):53-65. 2019,11(2):7894.
[18] FISCHER K,KLEIJN P D,NEGRIER C,et al. The asso‐ [29] HOXER C S,ZAK M,BENMEDJAHED K,et al. Utility
ciation of haemophilic arthropathy with health-related valuation of health states for haemophilia and related com‐
quality of life:a post hoc analysis[J]. Haemophilia,2016, plications in Europe and in the United States[J]. Haemo‐
22(6):833-840. philia,2019,25(1):92-100.
[19] OSOOLI M,STEEN CARLSSON K,BAGHAEI F,et al. [30] MAHLANGU J,OLDENBURG J,CALLAGHAN M U,
The association between health utility and joint status et al. Health-related quality of life and health status in per‐
among people with severe haemophilia A:findings from sons with haemophilia A with inhibitors:a prospective,
the KAPPA register[J]. Haemophilia,2017,23(3):e180- multicentre,non-interventional study(NIS)[J]. Haemo‐
e187. philia,2019,25(3):382-391.
[20] SOUCIE J M,GROSSE S D,SIDDIQI A E,et al. The ef‐ [31] BAEK H J,PARK Y S,YOO K Y,et al. Health-related
fects of joint disease,inhibitors and other complications quality of life of moderate and severe haemophilia pa‐
on health-related quality of life among males with severe tients:results of the haemophilia-specific quality of life in‐
haemophilia A in the United States[J]. Haemophilia,2017, dex in Korea[J]. PLoS One,2020,15(9):e0238686.
23(4):e287-e293. [32] LOTFI F,TALEBIANPOUR H,KESHAVARZ K,et al.
[21] WITKOP M,NEFF A,BUCKNER T W,et al. Self- Cost-utility analysis of factor Ⅷ diet therapies prepared
reported prevalence,description and management of pain using blood plasma vs. recombinant technique for patients
in adults with haemophilia:methods,demographics and re‐ with hemophilia A[J]. Daru,2020,28(1):287-293.
sults from the pain,functional impairment,and quality of [33] TAYLOR S,ROOM J,BARKER K. Physical activity le-
life(P-FiQ)study[J]. Haemophilia,2017,23(4):556-565. vels in men with haemophilia:a single centre UK survey
[22] BATT K,BOGGIO L,NEFF A,et al. Patient-reported out‐ [J]. Haemophilia,2020,26(4):718-725.
comes and joint status across subgroups of US adults with [34] BURKE T,ASGHAR S,O’HARA J,et al. Clinical,hu‐
hemophilia with varying characteristics:results from the manistic,and economic burden of severe hemophilia B in
Pain,Functional Impairment,and Quality of Life(P-FiQ) the United States:results from the CHESS US and
study[J]. Eur J Haematol,2018,100(Suppl 1):14-24. CHESS US+ population surveys[J]. Orphanet J Rare Dis,
· 3018 · China Pharmacy 2023 Vol. 34 No. 24 中国药房 2023年第34卷第24期