Page 85 - 《中国药房》2023年24期
P. 85

2021,16(1):143.                                     et  al.  Humanistic  burden  of  problem  joints  for  children
          [35]  JOHNSTON  K,STOFFMAN  J  M,MICKLE A T,et  al.     and  adults  with  haemophilia[J].  Haemophilia,2023,29
              Preferences  and  health-related  quality-of-life  related  to   (2):608-618.
              disease  and  treatment  features  for  patients  with  hemo‐  [47]  BENJAMIN  K,VERNON  M  K,PATRICK  D  L,et  al.
              philia A in a Canadian general population sample[J]. Pa‐  Patient-reported  outcome  and  observer-reported  outcome
              tient Prefer Adherence,2021,15:1407-1417.           assessment in rare disease clinical trials:an ISPOR COA
          [36]  O’HARA J,MARTIN A P,NUGENT D,et al. Evidence      emerging  good  practices  task  force  report[J].  Value
              of  a  disability  paradox  in  patient-reported  outcomes  in   Health,2017,20(7):838-855.
              haemophilia[J]. Haemophilia,2021,27(2):245-252.  [48]  连小赟,李魁星,华宝来,等. 北京地区单中心成人重型
          [37]  OLDENBURG J,TRAN H,PEYVANDI F,et al. Health-      血友病 A 患者的三级预防治疗[J]. 中国医学科学院学
              related quality of life and health status in adolescent and   报,2015,37(4):398-401.
              adult people with haemophilia A without factor Ⅷ inhibi‐  LIAN X Y,LI K X,HUA B L,et al. Low-dose tertiary
              tors:a non-interventional study[J]. Haemophilia,2021,27  prophylactic therapy for severe haemophilia A adults in A
              (3):398-407.                                        single  medical  center  in  Beijing  area[J]. Acta Acad  Med
          [38]  XU R H,DONG D,LUO N,et al. Evaluating the psycho‐  Sin,2015,37(4):398-401.
              metric properties of the EQ-5D-5L and SF-6D among pa‐  [49]  林艾灵,谭宝滢,宣建伟,等. 成人血友病A 患者预防治
              tients  with  haemophilia[J].  Eur  J  Health  Econ,2021,22  疗的多维度价值综述[J]. 中国卫生经济,2023,42(4):
              (4):547-557.                                        61-64.
          [39]  NIU  J  Y,NING  L  W,ZHANG  Q,et  al.  Health-related   LIN A L,TAN B Y,XUAN J W,et al. A review on the
              quality  of  life  of  patients  with  haemophilia:a  cross-  multidimensional value of prophylactic treatment in adult
              sectional survey in the Northeast of China[J]. BMJ Open,  hemophilia A patients[J]. Chin Health Econ,2023,42(4):
              2022,12(2):e056668.                                 61-64.
          [40]  RODRIGUEZ-SANTANA  I, DASMAHAPATRA  P,       [50]  MANCO-JOHNSON M J,SOUCIE J M,GILL J C. Pro‐
              BURKE  T,et  al.  Health-related  quality  of  life,direct   phylaxis usage,bleeding rates,and joint outcomes of he‐
              medical and societal costs among children with moderate   mophilia,1999 to 2010:a surveillance project[J]. Blood,
              or severe haemophilia in Europe:multivariable models of   2017,129(17):2368-2374.
              the CHESS-PAEDs study[J]. Orphanet J Rare Dis,2022,  [51]  吴洁琪,曹林林,孙利华. EQ-5D和SF-6D测量同期健康
              17(1):150.                                          效用值的比较研究[J]. 卫生经济研究,2020,37(2):
          [41]  RODRIGUEZ-SANTANA  I, DASMAHAPATRA  P,            42-45.
              BURKE  T,et  al.  Differential  humanistic  and  economic   WU J Q,CAO L L,SUN L H. Comparative study of EQ-
              burden  of  mild,moderate  and  severe  haemophilia  in        5D and SF-6D in measuring health utility value over the
              European  adults:a  regression  analysis  of  the  CHESS  Ⅱ   same period[J]. Health Econ Res,2020,37(2):42-45.
              study[J]. Orphanet J Rare Dis,2022,17(1):148.  [52]  李顺平,吴晶,陈钢. 多属性健康效用量表研制与应用述
          [42]  SHAIKH A,PEDRA  G,CAWSON  M,et  al.  Examining    评[J]. 中国卫生经济,2020,39(10):5-8.
              the  impact  of  haemophilia  treatment  on  health-related   LI S P,WU J,CHEN G. Review of development and ap‐
              quality of life[J]. Haemophilia,2022,28(5):796-805.  plication  of  multi-attribute  utility  instruments[J].  Chin
          [43]  STEEN CARLSSON K,WINDING B,ASTERMARK J,           Health Econ,2020,39(10):5-8.
              et al. Pain,depression and anxiety in people with haemo‐  [53]  WANG H,CAO C Q,GUO C H,et al. An evaluation of
              philia from three Nordic countries:cross-sectional survey   EQ-5D-3L health utility scores using five country-specific
              data from the MIND study[J]. Haemophilia,2022,28(4):  tariffs  in  a  rural  population  aged  45-69   years  in  Hua
              557-567.                                            county,Henan Province,China[J]. Health Qual Life Out‐
          [44]  XU R H,DONG D,LUO N,et al. Mapping the haem-A-    comes,2020,18(1):228.
              QoL  to  the  EQ-5D-5L  in  patients  with  hemophilia[J].   [54]  李顺平,窦蕾,房云海. 中国血友病药物经济学评价研究
              Qual Life Res,2022,31(5):1533-1544.                 的现状与展望[J]. 罕见病研究,2022,1(4):468-473.
          [45]  ZHANG W H,XIE S T,XUE F,et al. Health-related qua-  LI  S  P,DOU  L,FANG Y  H.  Current  situation  and  pro-
              lity  of  life  among  adults  with  haemophilia  in  China:a   spect  of  pharmacoeconomic  evaluation  of  hemophilia  in
              comparison with age-matched general population[J]. Hae‐  China[J]. J Rare Dis,2022,1(4):468-473.
              mophilia,2022,28(5):776-783.                                  (收稿日期:2023-07-24  修回日期:2023-11-23)
          [46]  BURKE T,RODRIGUEZ-SANTANA I,CHOWDARY P,                                           (编辑:孙 冰)






          中国药房  2023年第34卷第24期                                              China Pharmacy  2023 Vol. 34  No. 24    · 3019 ·
   80   81   82   83   84   85   86   87   88   89   90